Saturday 1 October 2016

Day 3

OK.Day three of this blog brings me to telling you how it began.

It was the day after my birthday at the end of June and He noticed blood in his urine. I insisted he should go to the doctor. He insisted he would if it happened again. I took to google. Loads of things it could be but nope, the schedule wouldn't permit a trip to the doc. He was adamant. I wish I'd nagged more now. Anyway, I made a note of it. Also noted that He had really pulled his back at work the day before. Was it linked? It reminded us that he'd had a really really tender painful area in his back, on the left side, just below his last rib. It's funny how you see all the warning signs clearly after the event. We put it down to muscle tear after he'd lifted a massive window frame up high. 

Fast forward to the first week in August. ( from my notes )
On the Saturday -bad back
On the Sunday - bad back and felt off it in the evening. Had a lemsip.
Super sweaty in bed. Figured  flu.
On the Monday - blood in urine. 
On the Tuesday - GPS

First visit in over 17 years I think. he suffers with disc trouble and sciatica and bad back so now HE goes straight to Private Sports chiropractor for manipulation ( out of his £££!!!  ) as GP says lose weight and go on waiting list for physio. 

Anyway due to symptoms 
Pain, fever, blood in urine, passing painful clots which interrupted flow. GP said kidney stones. 
Take painkillers but all the pain etc was probably from just passing the stones. 
He came home but then was in crippling agony right across his left side. Writhing and crying out in pain. I've never seen Him like it before. Peeing what looked like pure clotty blood again. 
Then all settled and was ok. Urine returned to usual colour. GP referred to Urology one stop clinic. 
This was because all men aged between 45 and 65 since the  NICE report are sent for further tests within two weeks. 

https://www.nice.org.uk/guidance/ng12

 https://www.nice.org.uk/guidance/ng12/chapter/1-Recommendations-organised-by-site-of-cancer

So there was no visible haematuria, no pain. Yes there was weight loss, but that could be explained by effort. Extreme fatigue - explained by being over 40 and working 12 hard hours daily in all weathers for five days a week. Satisfied it was Kidney stones ( although I'd been worried since my birthday in June ) we went on holiday. 
A lovely (almost)  carefree week away. We came home to find the letter with His appointment on. 
Thursday 25th August 2016

That'll do for now. 

Day 3 -done

17 comments:

  1. Thinking of you both, remember more people are living with cancer, and getting on happily after treatment. I had my brush in 2010, and now feeling great, positive thinking and loads of love.

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    1. I know, I know and thank you for your kind words. They do bring comfort and I'm glad you are ok xx

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  2. I don't really "know you", but feel like I do. I am sorry your husband and you and your family are going through this right now. I wish for quick, pain free, positive action which will get your husband in the clear!! Sending you love, Jenn

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    1. Thank you Jenn x I feel like we are real chums too x

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  3. Thought, good wishes and ((((hugs))) to you both. Catriona

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  4. Not Fun at all. Hope its all over very quick and they whip that kidney out and it hasn't spread.
    (I've had just one kidney for the last 30 years so one is fine.)

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    1. I like be how we say whip out a kidney! I say that too. You are an inspiration - especially with what you n Col n yours are going through x

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  5. What to say, nothing useful I'm sure, thinking of you and your OH and wishing, hoping and praying for the best possible outcome. Take care lovely xxx

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    1. Thank you MMC - there's really nowt to say is there? Except F U CANCER

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  6. Oh. I've no experience of it in kidneys but I know lots of people who have worked through cancer in other areas. I am sure your upbeat personsality will help you through it. (((hugs))) for you both. Helen

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    1. Thanks Helen, it'll all be fine, I'm sure of it xx

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  7. Uplifting and positive vibes sent your way. Xx

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  8. What to say Rachel? In all honesty I can't think of a single thing that's really worth saying when something like this happens. I am so glad their action plan is to take the kidney out. I'm sure your sense of humour will be the perfect tonic for you both over the next few weeks. Big Hugs. xx

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  9. I am so sorry for what you and your loved one are going through and will go through in the future.
    I'm afraid I am not on the Macmillan funding 'page' because they did Not help my dying cousin At All. Maybe it was bad luck but the Mac nurse at our local hospital (Medway Maritime gawd help us) was an unpleasant brusque person. My cuz and his wife complained. In the final fortnight when his wife asked for help she was told that waterproof pads had to be ordered (and they still havent arrived). My cuz passed away a week after that request. Whenever his wife asked for help she was only offered a phonecall.
    Unfortunately the NHS let my cousin down badly because "they don't scan the brain with lung cancer" despite the fact that is where lung cancer usually metastasizes.
    We had no clue that that is what would happen until he had an 'episode', ended up in A&E, was scanned there and the wonderful (truly) A&E consultant gave us all the bad news.
    I am sorry to tell our very recent story here when I should be giving you the 'pep talk' but it makes me angry and weepy as he only passed away Monday (26th) after a very short illness.
    I will follow your story with care and pray that all goes well with your Love.
    PS The oncology consultant was a bit laissez faire about having Any chemo, my cousin had to insist on it!

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